Congenital Lyme Treatment Protocol

Our oldest started Lyme treatment last month for Congenital Lyme Disease. He obtained Lyme and co-infections from me in utero. My doctor, Dr. K, agreed to treat him, as there are very, very few Lyme-literate Pedatricians in this state. Dr. K told me he receives calls every day from people looking for a Lyme-literate Pediatrician.

So far, his treatment is going well. According to Dr. K, children are less toxic and therefore herx less and usually improve more quickly. G's fatigue and hearing issues have worsened and he has been very emotional, crying at the drop of a hat. But, as hard as it is to see him this way, it means treatment is working and that is good news.

The scary part will be taking him off the meds. Sometimes symptoms come right back for Lymies. Hopefully, though, we can get him into remission and he will stay that way. We hope to switch to herbal treatments eventually, to slow the bacteria down and hopefully prevent advancment of the disease. Research is being done currently and we dream of the day of when there is a better option for people suffering from this disease...especially children. We are thinking positive and being confident that we are doing the right thing for him.

I will keep this page updated as his treatment changes...

G's Current Lyme Treatment Protocol
Morning
Ignite the Fire (Chinese Herbaceutical*) - 1/2 Tsp
Cefdinir - 1/2 Tsp
Nystatin - 2 Tsp
Juice Plus - 2

30 minutes- 1 hour after initial meds:
Empty the Bin (Chinese Herbaceutical*) - 1/2 Tsp

Afternoon
Probiotic (4 hours after antibiotic)
Calcium (M/W/F)
Omega (Flax or Fish Oil)
Ignite the Fire (Chinese Herbaceutical*) - 1/2 Tsp

Evening
Azithromycin - 1/2 Tsp
Juice Plus - 2

Bedtime
Probiotic (4 hours after antibiotic)
Nystatin
Empty the Bin (Chinese Herbaceutical*) - 1/2 Tsp

*Chinese Herbaceuticals are purchased from Dr. Franz and Kimberly Loi.

G's Food Sensitivities
Dairy
Wheat
*He is also eats a yeast-free, low-sugar diet

G's Symptoms
High Energy                                      
- Since birth 

Dairy Sensitivity                                
- Since birth

Sound Sensitivity                              
- Since birth

High Fevers (as high as 106)           
- Since age 1

Frequent IllnesS
- During age 1 – age 2 ½

Food Texture Issues                        
- Since age 1  

Temperature Sensitivity                 
- Since age 1?

Night Sweats                                      
- Since age 1 ½ 

Abdominal Pain                                 
- Since age 2 ½ 

Leg Pain                                               
- Since age 2

Anxiety/Mood Swings                       
- Since age 2

Arm Joint Pain                                    
- Since age 3 ½ 

Armpit Pain                                         
- Since age 4

Hearing Issues ("Ears are Tired")    
- Since age 4

Depression/Sadness                          
- Since age 4
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